Most children coming from Kami's background experience some degree of abnormal eye alignment. This comes from spending years laying flat on the back with no meaningful visual stimulation. The first thing a loving mother does is hold her baby in her arms, about 8-12 inches from her face, and gaze into her little lovey's eyes. Kami never experienced this. Since she entered the institution at 6 days old, she was deprived of even the earliest right to eye contact, which is the necessary start of visual development.
Two years ago, her eyes were almost always crossed. I have videos of our orphanage visits that document this. She could scarcely focus on anything or anyone, spending most of the day staring off into space with crossed eyes. Her ability to make eye contact and focus has improved tremendously over the course of her two years in our family. We knew early on that we would eventually need to get her eyes checked out, though. Her first therapist, Jennie, who started working with her 6 months post adoption, noted that Kami's eye turn would need evaluation. Because there was were so many issues that needed to be addressed at that point, we took a triage approach, and vision was not at the top of the list since it didn't seem to be interfering with daily life.
One of the first things to be taken care of was extensive dental work, which was done under sedation within a few months of adoption, as well as a physical checkup. At the physical, our pediatrician in Louisiana was shocked to learn of the conditions Kami experienced in Bulgaria. Taking into account the gross malnutrition and neglect she had suffered, he was expecting her blood to reflect this history. I remember when he came back into the exam room in October 2014 and told me that her blood was unbelievably healthy. He almost couldn't believe it. On one hand, I was surprised; but on the other hand, I wasn't. We had been praying for months ahead of Kami's adoption that He would preserve her health, and we also had felt much more prepared to deal with emotional problems than physical health problems in a child. Our family doesn't frequent healthcare facilities. We're quite unfamiliar with the processes and procedures of the medical industry, and we just didn't feel like we'd be a good fit for a child who was sure to need extensive medical care. (Not that we can choose these things when we give birth to biological children - but when we adopt, we fill out piles of paperwork detailing what conditions we think we can handle. It's just part of the process, as strange as it sounds.)
At two years post-adoption, it was finally time to pursue the vision evaluation. Her therapist, Kathy, very kindly urged us to get this done. So last week, Kami and I took a special trip together. We drove over to the area of town with the university where Mason and I graduated back in 2007-2008. Now that we live here in Florida again, it's always fun driving over to that part of town where we had our first little apartment as newlyweds! It seems like another lifetime, but it was only 9 years ago. Driving on those roads to the optometrist, I was struck by the fact that when we moved into our first apartment Kamelia was a newborn baby in Bulgaria. While she suffered on the other side of the world, we lived just around the corner from the location of the visual health office where she would be evaluated 9 years later.
This center came highly recommended, and I was excited about the trip. Actually, I was excited that Kami had finally reached a place where I could take her to an appointment and expect nominally good behavior the whole time. I still remember when we could hardly take her outside. The iPad always helps in these kinds of situations, since it's the only time she gets to play with it. All she wants to do on there is look at pictures, especially pictures of us in our Louisiana house.
She understood where we were going, and the office staff understood where she had come from. They were very interested in making the visit as pleasant as possible given her traumatic past. We waited only a few minutes and then were ushered back to the exam room for a full hour of the doctor's undivided attention. Dr. Chi was a kind, young doctor with a gentle and patient demeanor. He works primarily with special needs kids, so he wasn't thrown off by any of Kami's reactions to him. None of the equipment in the photo was utilized, but she did sit in the chair while he used his flashlights, lenses and prisms to magically discern what was going on in those searching brown eyes of hers.
She only cried out one time, when we put a pair of sunglasses on her, and quickly calmed down with my calm admonition. I did bribe her with fruit snacks as a reward for staying calm. Dr. Chi wisely decided to skip the dilation procedure, as he didn't think it was necessary and knew the benefits would not outweigh the pain. As he carefully got in her face with his lights and lenses, she murmured over and over to herself, "He not hurt you, Kami; he not hurt you." The iPad came in handy since I was able to hold it up for her to view pictures and videos while Dr. Chi examined her eyes. I'd never been to an eye doctor in my life, so the fact that he could shine a light into her pupil and exclaim "I saw it! I saw the nerve!" was pretty amazing. He worked hard to catch glimpses of the internal workings of her eyes, and somehow he saw everything he needed to see.
Kami's eyes, though one of them turns 20-30% of the time, are perfectly healthy. There is no damage, which is a wonder, again, considering the malnutrition and lack of proper development. What she does have is low muscle tone, since her eyes weren't exercised properly as she grew. For her entire life, she's been using her sight only for survival - literally looking to survive. Not looking for meaning, not looking for enjoyment, but looking merely to survive. I can see this now that the doctor explained it to me. This is why I often have to send her back to her room during my final minutes of dinner preparation, because she is staring intently at every food item I put on the counter. She's visually making sure that the food is there, and practically devouring it with her eyes to make sure that she gets some of it. I've figured out that I just can't make dinner with someone staring at me!
Our goal is to encourage her to keep learning to use her eyes for things beyond survival. Dr. Chi said that continuing to encourage her to climb, jump, play, and interact with her world meaningfully is what we should be doing. We're seeing glimmers of this already when she does a puzzle now, for example. It used to be she'd angrily overturn the puzzle and wail because she had zero visual recognition skills. The idea of matching the wooden shape to the matching hole made no sense and had no impact on her survival, so why should she do it? But in recent weeks, she's mastered an entire stack of wooden puzzles in our living room. This simple stack that used to bring her misery now brings her a sense of accomplishment that she knows what to do and how to do it. Our goal is to teach more of these visual skills through practicing matching and recognition.
The appointment was wonderfully encouraging because it confirmed to us once again that Kami is physically very healthy. God, in His wisdom, has equipped us to raise her. This was also the first doctor visit I can think of where the medical professional brought up the name of God before I did. I probably mentioned Him at some point in the conversation (because He comes up pretty naturally anytime we share Kami's story!), but Dr. Chi noted in amazement that there comes a point in optometry studies where everyone has to acknowledge God's design. I had heard this before - that of all the parts of the body, the eye is so masterfully complex and beyond human understanding that it's brought many doctors to their knees in awe of His intricate and intelligent design.
If you're so led, as many of you have been, you can pray for Kami to understand that her eyes are meant to do so much more than merely look to survive.
Kami's new dinnertime verse:
The eyes of all look to you in hope; you give them their food as they need it.
Psalm 145:15
Look, I am about to do something new; even now it is coming. Do you not see it? Indeed, I will make a way in the wilderness, rivers in the desert.
Isaiah 43:19











